Psp awareness month PSP is a rare and debilitating neurological disorder that affects movement, balance, vision, speech, and cognitive function. org Dec 2, 2024 · Would like to more information on this trial. Volunteer with Us Board of Directors Jun 28, 2024 · UHN-The Rossy PSP Centre EVENTS. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Oct 15, 2024 · FOR IMMEDIATE RELEASE Coleen Cunningham Foundation (CCF) Launches Global $10,000 Monthly AdWords Campaign to Boost PSP Awareness October 15, 2024 - The Coleen Cunningham Foundation (CCF) is excited to announce the upcoming launch of a worldwide digital awareness campaign for Progressive Supranuclear Palsy (PSP), thanks to a generous Google AdWords grant providing $10,000 per month. Dec 21, 2024 · UHN-The Rossy PSP Centre EVENTS. Mary April 23, 2024. Contact Telephone : 1-800-565-3000 Dec 18, 2024 · UHN-The Rossy PSP Centre EVENTS. During CurePSP Month of Awareness, we will share different ways May 30th, 2024 Speaker - Tim Brown (Awareness Month) View Recording April 25th, 2024 Speaker - Tim Brown (Tim Talks) View Recording Part 1 & 2 March 28th, 2024 Speaker - Tim Brown (Tim Talks) View Recording What to Expect: Support and Advocacy Committee Videos: Learn from a group of dedicated individuals spreading awareness and advocating for those affected by neurological diseases. In this blog post, we will explore these stages to provide a comprehens Oct 31, 2024 · 325 Hudson Street 4th Floor New York, NY 10013. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER May 15, 2023 · Progressive Supranuclear Palsy (PSP) is a rare neurodegenerative disorder that shares some features with Parkinson's disease but is distinguished by its unique symptoms and progression. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Aug 14, 2023 · Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery 2025 PSP Awareness Walk for Atypical Parkinsonism Jan 30, 2020 · 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Apr 24, 2024 · Join us this Thursday, April 25th, from 7-9 PM ET for an inspiring session with PSP Warrior, Tim Brown! This month, we’re diving into awareness topics to gear up for May Awareness Month. Risk of Falls: PSP patients have impaired balance and are prone to falls. Calling PSP Awareness Month, Ice Cream Challenge Day 19! Today my wife and I had an outing to EPCOT at Walt Disney World. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Dec 28, 2024 · UHN-The Rossy PSP Centre EVENTS. We have been trying for 3 years to figure out what was wrong with him. Laura's mother was diagnosed with PSP in 2018, and since then, Laura has been dedicated to raising Dec 12, 2024 · UHN-The Rossy PSP Centre EVENTS. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Jun 28, 2023 · UHN-The Rossy PSP Centre EVENTS. Despite Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery Oct 6, 2024 · UHN-The Rossy PSP Centre EVENTS. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Nov 3, 2019 · My dad who will be 65 soon, was just diagnosed with PSP a month ago. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER PSP AWARENESS MONTH 2023 BY THE GOVERNOR OF THE STATE OF NORTH CAROLINA A PROCLAMATION WHEREAS, progressive supranuclear palsy (PSP) is an uncommon neurodegenerative disease affecting nerve cells that control mobility, balance, walking, speech, swallowing, vision, behavior, cognitive abilities, and quality of life; and May 19, 2023 · Progressive supranuclear palsy (PSP) is a rare neurodegenerative disorder that affects movement, balance, speech, vision, and cognition. Washington, DC – Today, Congresswoman Jennifer Wexton (D-VA) spoke on the House floor to recognize PSP Awareness Month. While the motor symptoms of PSP are well-known, cognitive and behavioral symptoms, such as impulsivity, are often overlooked or misunderstood. Hear why Monica Mann is working tirelessly work to change that. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Jan 3, 2025 · UHN-The Rossy PSP Centre EVENTS. Early Detection: This breakthrough holds promise for diagnosing PSP early, which is essential for effective treatment and improved patient outcomes. PSP Awareness Month Advocacy Digital Toolkit Goal: Build awareness and understanding of what PSP is, how it impacts Americans and their families, and the urgent need to find treatments and a cure, as well as share personal stories of how PSP has impacted families across the countr y Hashtags: #PSPMonth #PSPAwarenessMonth #MyPSPStor y Graphics: Increase your month of awareness impact by asking your friends, family, and personal network to donate to CurePSP’s mission to raise awareness, build community, improve care and find a cure for PSP, CBD and MSA. There is limited research on the use of red light therapy (RLT) for PSP specifically, Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery PSP Awareness. Donate. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Nov 20, 2023 · UHN-The Rossy PSP Centre EVENTS. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Jul 5, 2024 · 2. The signs and symptoms of this disorder usually become apparent in mid- to late adulthood, most often in a person's 60s. Hope Line: 800-457-4777 Fax: 410-785-7009 info@curepsp. Jun 4, 2024 · “MJFF is appreciative of Congresswoman Wexton and CurePSP’s leadership and collaboration to advance critical legislation to support people with Parkinson’s disease and PSP,” said Mason Zeagler, government relations officer at MJFF. Each role provides unique benefits, Welcome to the Support and Advocacy Committee of the Coleen Cunningham Foundation - PSP Awareness. Being a caregiver for a loved one with PSP can be challenging, but here's a guide to help you navigate this journey. 10-15 yrs have gone by & we finally have a diagnosis for my mother. SHARE FAR & WIDE! Thank you All! Apr 25, 2024 · Atypical Parkinsonism Ice Cream Challenge for PSP, MSA, CBD and DLB PSP- Progressive Supranuclear Palsy MSA- Multiple System Atrophy CBD- Corticobasal Degeneration DLB- Dementia with Lewy Bodies May is Awareness Month and we need your help to spread awareness for these rare neurodegenerative diseases. That's why we are excited to announce our weekly Zoom support grou Washington, DC – May 23, 2024 – Today, Congresswoman Jennifer Wexton (D-VA) introduced a bipartisan resolution to officially recognize May as “Progressive Supranuclear Palsy (PSP) Awareness Month. org to ask what YOU can do to improve awareness in your locality! See the Governor’s information page on PSP awareness month Jul 30, 2023 · Progressive supranuclear palsy (PSP) is a rare brain disorder that causes serious and progressive problems with gait and balance, as well as complex eye movement and thinking problems. ” Wexton announced last summer that she had been diagnosed with PSP, an atypical parkinsonism which she often refers to as “Parkinson’s on 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER. Jun 5, 2023 · 📣 Join Our Zoom Support Group Meetings for PSP! 🌟Are you or someone you know affected by Progressive Supranuclear Palsy (PSP)? We understand that living with PSP can present unique challenges, and having a support network can make a world of difference. My testing will be complete in about 2 weeks . Engaging with loved ones who have limited mobility, speech, and eyesight can be challenging, but meaningful activities can make moments special. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Sep 19, 2023 · Respiratory Complications: PSP can affect the muscles involved in swallowing and breathing. com ©2024 CurePSP, Inc. The doctors would just keep over medicating him, until we found the right doctors & test. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER May 27, 2024 · Progressive Supranuclear Palsy (PSP) is a complex neurological disorder requiring a comprehensive care approach. Volunteer with Us Board of Directors Mar 30, 2024 · Laura Louizos is a blogger an advocate for PSP (Progressive Supranuclear Palsy) and Founder of CCF for PSP Awareness. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Oct 21, 2024 · 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER. ” Wexton announced last summer that she had been diagnosed with PSP, an atypical parkinsonism which she often refers to as “Parkinson’s on steroids. Support Groups. Whereas progressive supranuclear palsy, often referred to as “PSP”, is an adult onset neurodegenerative disorder that affects multiple areas of the brain and causes complex symptoms and care needs; PSP Awareness by CCF Coleen Cunningham Foundation, Raising awareness and providing support for Progressive Supranuclear Palsy, Multiple System Atrophy and Corticobasal Degeneration. L AST year our supporters did us proud when thousands of you, around the UK, wore Ed’s Laces to help spread the word about PSP and the Association’s important work. Key roles within PSP care teams include Physical Therapists (PT), Occupational Therapists (OT), Speech-Language Therapists (SLT), Neurologists, and Neuro-Ophthalmologists. awareness of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) we can help improve diagnosis and care, encourage policymakers to increase access to services and fund research, and amplify the voices of our community. Educational Events: Host seminars, webinars, and workshops to educate the public, healthcare professionals, and policymakers about Atypical Parkinsonism. This can pose a risk for PSP patients, who may already have compromised respiratory function. org Nov 3, 2019 · Need psp support. Jun 20, 2023 · Progressive Supranuclear Palsy (PSP) is a complex neurological disorder that affects each individual uniquely. Educate others on PSP & CBD Foundation, Inc. It is part of a family of Parkinsonisms (Parkinson-like), the more well known being ALS. Apr 15, 2024 · Equip yourself with all the necessary tools to raise awareness for PSP, CBD and MSA. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Feb 14, 2023 · Progressive supranuclear palsy (PSP) is a rare neurological disorder that affects movement, balance, and cognition. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER UHN-The Rossy PSP Centre EVENTS. Public Awareness Campaigns: Conduct campaigns to raise public awareness about Atypical Parkinsonism and the challenges faced by those affected. This blog post aims to provide an in-depth look at rigidit UHN-The Rossy PSP Centre EVENTS. One of the main challenges faced by individuals with PSP is managing the movement-related symptoms, particularly rigidity and dystonia. More details coming soon! Here is a sneak peek at some of our gift baskets for our upcoming March online auction to support individuals and families touched by Atypical Parkinsonism. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Apr 25, 2023 · Progressive Supranuclear Palsy (PSP) is a rare neurodegenerative disorder characterized by a wide range of motor, cognitive, and behavioral symptoms. A very rare (17k-20k only in the USA) brain disease called #psp #progressi UHN-The Rossy PSP Centre EVENTS. Volunteer with Us Board of Directors Dec 30, 2024 · Laura Louizos is a blogger an advocate for PSP (Progressive Supranuclear Palsy) and Founder of CCF for PSP Awareness. PSP shares similar symptoms with Parkinson's disease, but it progresses more rapidly a Dec 6, 2024 · 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER. My husband was diagnosed with PSP a month ago! He is 78. Primary Progressive Aphasia is a type of dementia that primarily affects l Dec 20, 2024 · UHN-The Rossy PSP Centre EVENTS. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Jun 24, 2024 · Press Release FOR IMMEDIATE RELEASE Coleen Cunningham Foundation Awarded Google Ad Grant Canada – The Coleen Cunningham Foundation (CCF) is thrilled to announce that we have been awarded the prestigious Google Ad Grant, providing us with $10,000 a month in ad spend for our campaigns. Date(s): Meets the 3rd Monday of each month (except July & August) Time : 1:00 PM-3:00 PM. Mar 30, 2024 · UHN-The Rossy PSP Centre EVENTS. WHEREAS, progressive supranuclear palsy, also known as PSP, is a neurodegenerative disease affecting the brain cells, particularly in areas that control mobility, balance, walking, speech, swallowing, vision, behavior, and Bereavement Support Group for Adult Children Care partners by CurePSP Meeting Time: 1st Tuesday of each month from 7:00-8:00pm ET Click here to register Facilitators: Kathy DeMarco disneykat@aol. Understanding the nuances between the two can aid in appropriate diagnoses and subsequently, more effective treatment strategies. I’m trying to learn as much as I can about his disease! I’m worried and scared. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Nov 18, 2019 · May is PSP awareness month and it will be the first year anniversary of Moms passing (05/18/2019) We are at $1,130 and almost half way to the first goal! And we are just getting started! Any amount helps! Sharing this post also helps!! Please help us spread and raise awareness for this horrible disease. While the journey may differ from person to person, medical professionals often categorize the progression of PSP into four broad stages. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Nov 5, 2019 · UHN-The Rossy PSP Centre EVENTS. May is CurePSP Month of Awareness. It is caused by the degeneration of brain cells, leading to an accumulation of a protein called tau. Expressing support for the designation of the month of May 2024 as “Progressive Supranuclear Palsy Awareness Month”. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Mar 13, 2023 · UHN-The Rossy PSP Centre EVENTS. Facilitator: Looking for Facilitator, please EMAIL Burlington Support Group (Parkinson’s, PSP/MSA/CBD) Address : Appleby Place - 500 Appleby Line, Burlington, ON L7L 5Z6, Canada. PSP is a neurodegenerative disease with no treatment-cure. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Feb 7, 2024 · Designating May, in 2024 and in each succeeding year, as Progressive Supranuclear Palsy Month of Awareness in Virginia. It is characterized by symptoms such as changes in mood and behavior, impaired balance and coordination, and difficulty with speech and swallowing. May 1, 2023 · Progressive Supranuclear Palsy (PSP) is a rare and complex neurodegenerative disorder that affects approximately 6 out of every 100,000 people worldwide. Nov 22, 2023 · UHN-The Rossy PSP Centre EVENTS. CurePSP, Unlocki Dec 30, 2024 · UHN-The Rossy PSP Centre EVENTS. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Progressive supranuclear palsy (PSP) is a rare disease with no known cause or cure. 🗓️ What to Expect: • Engaging discussions • Valuable insights • A community that caresDon’t miss out on this opportunity to learn and Nov 20, 2024 · UHN-The Rossy PSP Centre EVENTS. org May 23, 2024 · Washington, DC – May 23, 2024 – Today, Congresswoman Jennifer Wexton (D-VA) introduced a bipartisan resolution to officially recognize May as “Progressive Supranuclear Palsy (PSP) Awareness Month. Now definite diagnosis of PSP as of a year ago. Jun 16, 2023 · Among these is Progressive Supranuclear Palsy (PSP). Play their favorite tunes, nature sounds, or lis Nov 11, 2019 · UHN-The Rossy PSP Centre EVENTS. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Promote Awareness and Education. Volunteer with Us Board of Directors Sep 29, 2024 · UHN-The Rossy PSP Centre EVENTS. This is our largest grant to date a Jun 22, 2024 · Volunteer as a Support Group Leader: Make a Difference in the Lives of Families Affected by Atypical Parkinsonism Position Title: Volunteer In-Person Support Group Leader (2 positions open) Meeting Schedule: Last Monday of every month, 1:00 PM - 3:00 PM Location: Church in Burlington, Ontario Role Overview: The In-Pers CCF for PSP Awareness Walk 2024 Canada - May 2024 Participants Sponsors Volunteers. Across Canada, USA, UK and Worldwide. Volunteer with Us Board of Directors UHN-The Rossy PSP Centre EVENTS. This blog post aims to prov Sep 8, 2023 · Progressive Supranuclear Palsy (PSP) can greatly impact an individual’s quality of life. PSP Awareness Month | Progressive supranuclear palsy (PSP) is a rare disease with no known cause or cure. The disease primarily impacts the elderly, with most cases developing after the age of 60. I have a lot of the same symptoms but my falls are getting worse and eyes are starting to really bother me. Our May Month of Awareness Toolkit is your key to sparking change and spreading hope. , unless attribution otherwise noted. 5. The Impact of This Discovery Awareness PSP Awareness Week We are excited to unveil our 2016 PSP Awareness Week campaign and we’re calling for your help to make it a success. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Nov 13, 2024 · UHN-The Rossy PSP Centre EVENTS. Jun 27, 2024 · Swallowing Difficulties: Common in PSP, where swallowing muscles are weakened or uncoordinated. October 15, 2024 - The Coleen Cunningham Foundation (CCF) is proud to announce the launch of the "Faces & Voices" campaign, an initiative aimed at increasing global awareness about Progressive Supranuclear Palsy (PSP). All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER They strive to improve the quality of life of people living with PSP & CBD through research, education and awareness raising. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER The state of Virginia has just enacted a law declaring each May “PSP Month of Awareness. In this blog post, we will explore the swall UHN-The Rossy PSP Centre EVENTS. Anesthesia, especially general anesthesia, can depress respiratory functions. UHN-The Rossy PSP Centre EVENTS. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Hosted by: CCF for PSP Awareness. Our committee is dedicated to raising awareness about atypical parkinsonism, including Progressive Supranuclear Palsy (PSP), Multiple System Atrophy (MSA), Corticobasal Degeneration (CBD), and Dementia Lewy Bodies (DLB) a May 22, 2024 · Wexton Delivers Remarks on House Floor Recognizing PSP Awareness Month. While there is currently no cure for PSP, treatment options focus on managing symptoms and improving quality of life. In celebration of my first outing, outside of my community, in my wheelchair, I am Dec 26, 2024 · Progressive Supranuclear Palsy (PSP) is a rare neurological disorder that affects movement, balance, cognition, and various other bodily functions, including bladder control. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Apr 19, 2023 · UHN-The Rossy PSP Centre EVENTS. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Sep 14, 2023 · UHN-The Rossy PSP Centre EVENTS. As the disease progresses, individuals living with PSP often require assistive devices and mobility aids to help maintain their independence and safety. PSP is characterized by progressive problems with balance, movement, vision May 24, 2024 · The bipartisan resolution to officially recognize May as PSP Awareness Month has already received over 100 cosponsors from both sides of the aisle, a record number of original cosponsors for a bill by her team. These sleep disorders can be caused by the underlying neurodegenerative process of PSP, as well as by medications used to manage PSP symptoms. Coming in May 2023 for PSP Awareness Month! 100% of Proceeds Support Individuals and Families Touched by Atypical Parkinsonism. Understanding PSP: May 6, 2019 · May Is PSP Awareness Month (Progressive Supranuclear Palsy). Neuromuscular Dysfunction: PSP affects the brain regions responsible for movement and coordination, including those involved in swallowing. This comprehensive blog post w Apr 9, 2023 · Here are some examples: Coleen Cunningham Foundation for PSP Awareness: CCF for PSP Awareness is a nonprofit organization dedicated to providing support and resources for in There are several resources and support services available in Canada for individuals with PSP (progressive supranuclear palsy) and their families. The briefing also focused on gaining co-sponsors for a resolution to recognize May as PSP Awareness Month. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER May 4, 2023 · Progressive supranuclear palsy (PSP) is a rare, progressive neurological disorder that affects the brainstem and basal ganglia. Laura's mother was diagnosed with PSP in 2018, and since then, Laura has been dedicated to raising aw Jul 12, 2023 · UHN-The Rossy PSP Centre EVENTS. Reduced Cough Reflex: PSP patients may have a weakened cough reflex, reducing the ability to clear the airway. Jul 10, 2024 · UHN-The Rossy PSP Centre EVENTS. PSP shares similar symptoms with Parkinson's disease, but it progresses more rapidly a Jul 7, 2023 · Primary Progressive Aphasia (PPA) and Progressive Supranuclear Palsy (PSP) are two distinct neurological disorders. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Dec 16, 2024 · UHN-The Rossy PSP Centre EVENTS. My husband was first diagnosed 3 years ago that something neurological was wrong. Whether you're walking in honour of a loved one, for personal reasons or just to support a great cause, we're glad to have you. The more people that know about these neurodegenerative diseases and our mission, the better! Contact PSP and CBD Foundation today at info@pspcbdfoundation. We welcome all to join the walk for raising awareness for Atypical Parkinsonism. Understanding PSP’s Progression: Unlike Parkinson’s, PSP progresses rapidly, with a typical patient lifespan of just seven years post-diagnosis. 3. By raising awareness of PSP, CBD and MSA, we can help improve diagnosis and care, encourage policymakers to increase access to services and fund research, and amplify the voices of people living with or caring for progressive supranuclear palsy (PSP), corticobasal Jan 1, 2025 · 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER. Wexton, who was diagnosed with PSP last year, as she led a bipartisan resolution to recognize May as PSP Awareness Month, receiving over 100 cosponsors and an outpouring of support on social media. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Apr 4, 2023 · Sleep disorders are common in people with PSP (Progressive Supranuclear Palsy). Among the various symptoms experienced by individuals with PSP, pseudobulbar affect (PBA) is one of the most misunderstood and underre Oct 2, 2024 · UHN-The Rossy PSP Centre EVENTS. Some common sleep disorders in PSP include: Insomnia: Difficulty falling asleep or staying asleep Oct 24, 2024 · UHN-The Rossy PSP Centre EVENTS. One of the less discussed but profoundly impactful symptoms of PSP is the frequent urge to urinate combined with difficulty in actually voiding o Atypical Parkinsonism Ice Cream Challenge for PSP, MSA, CBD and DLB PSP- Progressive Supranuclear Palsy MSA- Multiple System Atrophy CBD- Corticobasal Degeneration DLB- Dementia with Lewy Bodies May is Awareness Month and we need your help to spread awareness for these rare neurodegenerative diseases. 🌍Order now before it's too late! Progressive Supranuclear Palsy (PSP) is a brain disorder that affects movement, vision, speech, and thinking ability (cognition). All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Nov 3, 2019 · 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER The Rossy Progressive Supranuclear Palsy (PSP) Centre in Toronto Ontario, Canada. Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk Apr 1, 2023 · 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER. Cheryl Arnold April 23, 2024. Here are some tailored suggestions:1. On the Journey - Weekly Jun 26, 2023 · Understanding neurodegenerative diseases can often feel like deciphering a complex code, particularly when different conditions present similar symptoms. After UHN-The Rossy PSP Centre EVENTS. . Two such conditions that are frequently compared due to their overlapping symptoms are Progressive Supranuclear Palsy (PSP) and Parkinson's disease. com and Kathleen Egan, kath. Supports and Resources Available in Canada for Atypical Parkinsonism. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Apr 23, 2023 · Progressive Supranuclear Palsy (PSP) is a rare neurodegenerative disorder that shares some features with Parkinson's disease. Jul 28, 2023 · UHN-The Rossy PSP Centre EVENTS. Jan 5, 2025 · UHN-The Rossy PSP Centre EVENTS. Volunteer with Us Board of Directors Nov 26, 2024 · She rode that momentum into the new year with a powerful PSP Awareness Month campaign in May 2024, rallying over 100 members of Congress to recognize May as PSP Awareness Month and included posts from numerous colleagues on social media wearing pins that said “PSP Awareness” with the hummingbird logo, showing support and sharing facts on PSP. Laura started PSP Awareness to help Support & Spread Awareness throughout the communities and in the medical field for Progressive Supranuclear Palsy (PSP), Corticobasal Degeneration (CBD), Multiple System Atrophy (MSA). All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Nov 11, 2024 · Coleen Cunningham Foundation’s Support and Advocacy Committee Launches Global "Faces & Voices" Campaign for PSP Awareness. egan21@gmail. Since 1965, Parkinson Canada has worked to provide support services and education to people living with Parkinson’s disease including PSP/MSA/CBD, their families, and the health care professionals who treat them. Sep 5, 2023 · UHN-The Rossy PSP Centre EVENTS. Volunteer with Us Board of Directors 4 days ago · UHN-The Rossy PSP Centre EVENTS. This is a powerful opportunity to educate the world about our work, mission and vision. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER May 23, 2023 · Progressive supranuclear palsy (PSP) is a rare neurological condition that affects movement, balance, speech, vision, and cognition. ”“I know personally how Jun 30, 2023 · Posted by: @kelencoleman It's the last day of Alzheimer's & brain awareness month & l'm finally ready (ish) to share (with my parents permission) a bit of our story. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Jun 7, 2023 · 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER. Wexton shared the story of her personal journey batling PSP and the urgent need to raise awareness of the rare disease. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER May 3, 2024 · 325 Hudson Street 4th Floor New York, NY 10013. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Mar 14, 2024 · UHN-The Rossy PSP Centre EVENTS. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER May 24, 2024 · Colleagues then rallied around Rep. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Nov 5, 2024 · UHN-The Rossy PSP Centre EVENTS. Jun 4, 2024 · 325 Hudson Street 4th Floor New York, NY 10013. May 8, 2024 · The state of Virginia has just enacted a law declaring each May “PSP Month of Awareness. Jan 7, 2024 · UHN-The Rossy PSP Centre EVENTS. ” Former Virginia State Senator and current US Representative Jennifer Wexton announced her diagnosis of PSP in September 2023 and has been working to help spread much-needed public awareness of the disorder. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Nov 3, 2019 · Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery 2025 PSP Awareness Walk for Atypical Parkinsonism Nov 19, 2019 · UHN-The Rossy PSP Centre EVENTS. All Events 2025 PSP Awareness Walk for Atypical Parkinsonism Awareness Month Ice Cream Challenge Community Awareness Campaigns Awareness Walk May 2024- Gallery CONNECT & VOLUNTEER Nov 22, 2024 · UHN-The Rossy PSP Centre EVENTS. wywg xwff hvvz jdvlqbo kodr zlxslse ldvc idwro ycnk rgnopam